Surveys
Project-evaluation surveys (sample questions)
- Member’s category: patient, physician, caregiver, scientist, or other stakeholders.
- Do you believe that genetic information should be incorporated in CER research (Yes, No, Neutral)?
- Do you know how genetic information may be incorporated in CER research (Yes, No, Neutral)?
- How familiar you are with Precision Medicine (scale 1-5)?
- How familiar you are with PCOR and CER (scale 1-5)?
- Do you believe that participation on a multidisciplinary board (e.g., CAB) may effectively improve your understanding of genetic concept and CER (scale 1-5)?
- How familiar you are with genetic risk factors (scale 1-5)?
- Scale your interest level about how genetic information may be used in CER studies (scale 1-5).
- Do you understand the goals and objectives of the CAB (Yes, No, Neutral)?
- Do you clearly understand the roles and responsibilities of CAB members (Yes, No, Neutral)?
Session-evaluation surveys (sample questions)
- Member’s category: patient, physician, caregiver, scientist, or other stakeholders.
- How informative was the session (scale 1-5)?
- Was the information provided in an easy to understand manner (scale 1-5)?
- Which topic was the most informative/useful for you?
- Did you find the changes/improvements in the project website positive (Yes, No, Neutral)?
- What aspects of the CAB are functioning well?
- How can the functioning of the CAB be improved?
- What would you like to see included on the CAB website? Additional suggestions/comments (optional)
- Do you feel there is trust and mutual respect among CAB members (Yes, No)?
- Do you feel there is trust and mutual respect between CAB members and the research team (Yes, No)?
- Do you feel that your opinions are heard and respected (scale 1-5)?
- Do you need a personal meeting with the PI or the research team members for further clarification of materials discussed in the session?